You know when words fail you? That whatever you write or say can't possibly encompass all that you feel about something? That's how I feel about Lupus. It's an autoimmune disease that, chances are, affects at least one of you reading this and you may not even know it. Maybe it's you or your best friend has it or your cool aunt suffers from it or your favorite pop star shows signs of Lupus. My mama does.
When you have Lupus, you may feel tired all the time, your fingertips may turn blue from not enough blood, you've might have this bright redness across your cheeks and the bridge of your nose that looks kind of like a butterfly, your joints may hurt a lot, you can get a rash from sunlight, or when it's really bad, your kidneys might start to fail so your legs swell and you can't stand, or you may break out in weeping sores, or your hair could start to fall out and collects in the shower drain, or you may experience debilitating pain so bad you can't get out of bed and you don't know why.
Mostly, it's women that suffer from Lupus. Chances are even higher for women of color. The disease usually becomes apparent between the ages of 15-45. My mother showed signs of it when she was in her twenties but wasn't diagnosed with Systematic Lupus Erythematosus (SLE) till just a few years ago. She's one of the lucky ones, I guess. The mortality rate for the most harmful of the four types of Lupus is grim. According to the Centers for Disease Control and Prevention, of those that die from SLE, more than a third pass on before reaching the age of 45.
|Dr. Horrible, Dollhouse, and Spartacus writer Maurissa Whedon has SLE.|
* What is Lupus?
* Could you have Lupus? Here's a checklist.
* Like any good geek, you'll wanna check out the statistics.
* While there hasn't been much research on Lupus, there has been some. Read up on the latest.
* Feel like donating to help find a cure or even just a medicine that will do more to help relieve the suffering? Give a buck to the Lupus Foundation of America and say screw you, Lupus.